You have to watch this: My Last Days: Meet Zach Sobiech

Seriously, you have to watch this.
Seriously!
Just do it.
I promise, you won’t regret it.
I’m not kidding, watch it now…

 

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Make sure you catch some of the amazing things he says:

You don’t have to find out you are dying to start living.
Life is beautiful.
You can either sit in your basement and wait or you can get out there and do some crazy stuff.
Go down fighting.
You can stress about dying or you can just relax.

zach-sobiech

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And here is Zach singing Clouds,
a amazing song he wrote
and recorded a few months ago.

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Celebrating while being honest about disappointments

May 20th is the day…
The day my life changed.
The day that normal as I knew it ended.
The day I received injuries over 60% of my body.
The day when I almost died and almost lost my leg.
The day that divided the rest of my life into before and after.

May 20th is the day…
When the impossible happened.
When I began appreciating each day as a gift.
When I began a journey of discovering who I really am.
When I survived an accident I wasn’t expected to survive.
When I began living in the now, instead of in the past or in the future.

 

Living in the tension of celebrating the good that happened,
while being honest about the disappointments I live with.

 

I’m not very detailed about many things in life… but when it comes to remembering dates, I can be super detailed even when I don’t want to be. I remember dates of many important and unimportant things. Jerry has given up trying to come up with an answer when I ask, “Remember what happened on this date 2, 5, 8 or 21 years ago?” He just asks, “What?” Because he knows it could be something significant, like the day we met or it could be something somewhat trivial like a day we moved in the past or the day I first got a kayak.

So naturally I remember the date when accident injuries changed my world. I don’t even try to remember it. It’s simply in my mind each and every year around May 20th. Along with my mind remembering it, I learned from my counselor that every cell in my body probably remembers the traumatic events. It was a relief to learn that because it helped me undersand why each year around May 20th, I feel an influx of emotions… thankful, irritable, reflective, tired, edgy, annoyed, etc.

Thankfully over the years the trauma of the day has decreased, but it hasn’t disappeared like I thought it might. Last year I did the Bob Potts Marathon on the 8th anniversary of the accident, so earlier this year, I found myself debating if I wanted to plan some type of big event this year.

I decided while that was good for last year, I don’t need to do a big thing every year. A low-key day is good also. Plus I wondered (hoped!) if maybe this year the date wouldn’t bother me as much because of the marathon I did last year and because it’s almost a decade now.

It didn’t quite work out that way… while last year’s marathon might have helped me to ‘reclaim’ the day to some degree, it didn’t make it go away. I woke up on the 20th and it’s what I thought of immediately. It’s what was on my mind as I did some book keeping for myself and for my husband’s business. It’s what was on my mind as I ran an errand. Thankfully I had a few hours of distraction during a long lunch with friends, including an out-of-state friend who was in the area, but even during our conversations, it was in the back of my mind.

Living in the tension of celebrating the good that happened 
while being honest about the disappointments I live with.

I had started the day with a morning run/walk in my neighborhood. My left leg ached a little more than normal (not sure why, some days it just complains louder than others) but I was grateful that I could be out there walking and running. I thought about all the paramedics, doctors and other medical personnel who saved my life and helped me recover. And I welled up with gratitude thinking about my family and friends who helped me in countless ways over the past 9 years. I wouldn’t be where I am today without them.

I also thought about the many great people I’ve met over the past 9 years, especially the ones who face various obstacles of their own, but they keep doing what they can. I’ve been honored to share some of their stories on here.

Though thankful, I also have moments of anger, sadness and disappointment that…
I will spend the rest of my life with pain.
I will always be faced with some limitations.
I will spend the rest of my life with a funky-looking leg.
I will always wonder what life would be like if the accident hadn’t happened.

I thought about the miserable, dark days I had as I adjusted to life with pain, limitations and a deformed leg. I thought about the times I wanted to call a doctor to beg for risky cosmetic surgery on my leg. I thought about the journey of learning that time alone does not heal all wounds. And of the times something unexpected triggered post traumatic stress.

I thought about how I’m more aware of what my body needs and what it doesn’t need. How switching to a plant-based diet has increased my energy and decreased my pain and about the moments when I felt like I could run forever. Also how I now know things like what to give to hospital patients.

Living in the tension of celebrating the good that happened 
while being honest about the disappointments I live with.

I thought about the mindsets I’ve changed because I’ve been willing to think about things that I used to not allow myself to. How I learned what is kind instead of coming across like a jerk when someone’s life changes. About how much more peace I have since I’ve adjusted my mindset to not believing that everything happens for a reason. And how freeing it is to allow the sands of change to flow.

Reflecting, thinking, processing… it’s all a necessary part of the journey.

So in one way it’s an important day for me, because it’s the day that forever changed my life… but in another way, I remind myself that it’s simply a day. A day like every other when I have the power to make a choice to live well by…

doing what I can, with what I have, where I am… because I can!

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As I was writing this, I heard the news about the powerful tornado in Oklahoma which claimed many lives and injured countless others. With my emotions heighten already, it made for a tough evening while making me debate if I even wanted to publish this today. But another thing that I’ve learned is that while another tragedy might give us a new perspective, it doesn’t change the effects of our own traumas. So I will continue to process my own story, while being heartbroken for everyone affected by the tornado.

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Rebecca—A 1,000 Mile Journey, Because She Can!

rebecca-profile-2Thanks to the wonderful world of Facebook, I recently met Rebecca online. Rebecca live within an hour’s drive from me near Philadelphia, so hopefully we will meet in person sometime.

Today I want you to meet Rebecca, because she is one of those folks who does what she can, with what she has, where she is… because she can!

Here’s Rebecca’s inspiring story…

 

Janet: Tell us a little about yourself.

Rebecca: I am a teacher, inline skater, cyclist, reader, writer, photographer, traveler, friend, oldest sister, cousin, daughter, or granddaughter — depending on who you ask.  I’m 43 years old and live in Philadelphia where I help run the special education program at a public charter school.   I am also an above-knee amputee walking step-by-step through an unexpected journey.
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When and how did your world change?

On the morning of November 9, 2010, while riding my bicycle to work, I was struck by a garbage truck when it turned into my designated bike lane.   My left leg was crushed by the wheels of the truck, and I suffered severe internal injuries.   I was taken by ambulance to Jefferson Hospital’s Trauma Center.  There, an amazing group of trauma surgeons saved my life, but they had to amputate my left leg to do so.

Dec. 17. 2010. Ready to be discharged from the hospital with my brothers Andy and Mark

With her brothers about 5 weeks post-accident… December 17, 2010

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What was your recovery like… physical, emotional and/or mental? 

Prior to the accident, I bike commuted for 5 years.  I skated with an inline skate club for 15 years.  I led an active life that included working full time, socializing with friends, and traveling.  I was always healthy.  I rarely missed a day of work.

During the long recovery after the accident, I found myself in unchartered territory.  There were many set-backs, including infection and abdominal complications.  Over 2 years, I was hospitalized 7 times and had 15 surgeries.  The acute pain and phantom limb pain were at times difficult to bear.  I struggled with nightmares and flashbacks of the accident.  Being sedentary and dependent on others was a big adjustment since I’d been so active and independent before.

But I was lucky in more ways than I can count.  I’d been wearing a bike helmet and sustained no head injury in the accident.  From the very beginning, I received first-rate medical treatment and rehabilitation.  When my leg was healed enough, I was fitted with a state-of-the-art prosthesis and received excellent prosthetic training.

Early on, my aunt and uncle gave me a necklace inscribed with the Confucius quoteThe journey of a thousand miles begins with one step.  As I recovered, I decided to set a goal of walking 1000 miles on my prosthesis.  Each mile marker served as a way to measure progress and help me digest all that had happened.  I documented the journey via my blog: A Thousand Miles.

Throughout this experience, I’ve been supported by family, friends, and professionals who never gave up or let me feel alone.  Even today, 2 ½ years later, they continue to encourage me every step of the way.

Mile 1 with my brother Mark and Jack

The first mile of a 1,000 – with her brother Mark and Jack.

I like hearing what makes people do what they can… was there a defining moment that inspired you to push your limits or was it a slow realization of seeing what you are capable of? 

When I met my prosthetist Tim for the first time, he said, “I’m not going to tell you what you can’t do.  You tell me what you want to do, and I’m going to help you get there.”  I was sold!   I told him I needed a leg I could SKATE on.

My friend Susan helps me relearn to skate

Her friend Susan helps her relearn to skate

But there hasn’t really been one defining moment in this journey.  Rather it’s been a process that’s unfolded day by day, mile by mile.  The slogan of my rehab hospital is BELIEVE.  And it’s those types of messages that guide me forward.  Whenever I have doubts about my own abilities, I look to those around me for reassurance.

For example, I wanted to try to ride my bike again, but after the accident I was skittish and leery.  I was afraid that getting back on a bike – the very act of pedaling – might make me relive the accident like I did so many nights in the beginning of my recovery.  My physical therapist Deb was determined to teach me to ride.  She said, “It’s ok if you don’t want to bike again, but you should know that you can.  It should be your CHOICE.”

So my therapy team puzzled out how to keep my prosthetic foot on the pedal, and we practiced session after session in the basement of the rehab gym.  Finally, on March 30, 2013, almost 2 ½ years after the accident, I rode my bike away from that intersection where I’d been hit.  It was my official 1000th Mile!

There are a thousand stories like this.  Throughout my recovery, I’ve met so many people who’ve pushed themselves to new heights.  And all along, I’ve been embraced by a team that enables me to test my own limits and see what I’m really capable of achieving.

Mile 1000

‘Leaving her foot’…

Mile 1000 bike ride

Then biking away from the accident location –   the 1,000th mile

 

 

 

 

 

 

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What do you do that others are surprised you do? 

I paint the toenails of my prosthesis!

Although it seems like a small detail, people are always surprised when they see me with painted toenails.  I just tell them, “I gotta keep the main thing, the main thing!”

That first summer, I asked my prosthetist if I’d be able to walk in sandals.  He showed me how to use strips of Velcro to stick my prosthetic foot to the sandal.  When I got home, I just had to give myself a pedicure!

But really, it’s part of a larger picture.  I have an optimistic and bright outlook on life.  I need to put my best foot forward – even with a body part that resembles a robot!  It’s just one more way I try to keep my life “normal.”

Sportin sandals

Putting her best foot forward!

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In what ways do the obstacles you face affect your daily life that others might not be aware of?

With jeans on, you might not be able to tell I wear a prosthesis.   With lots of therapy, I’ve learned to walk with a natural gait and navigate most types of terrain.  But the paradox of walking better is that people FORGET.

They forget that I have to concentrate when I cross a street or go down a hill.  They don’t realize how my independence is limited by weather conditions – snow, ice, or wind – that make walking on a prosthesis difficult, if not impossible.

Also, I can’t wear my prosthesis 24/7.  I take it off every night and can’t wear it when I have skin irritations.  Without it, I need crutches and adaptive equipment.  I’m less confident and able.    And I’m much more vulnerable, especially in emergency situations such as illness, fire alarms, or power outages.
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What goals have you reached that you didn’t know if you could?

I certainly never imagined I’d be able to teach people about prosthetics or mentor other amputees.  I’m pleased to say that I’m currently doing both.  I’ve had the opportunity to share my knowledge with elementary and middle school students, as well as with classes of PT students at local universities.

I also volunteer at the rehab hospital where I was a patient.   I love meeting new amputees who are just beginning this journey.  I hope that my experiences can help them weather the ups and downs of their own recovery, and in some way, inspire them to reach their own goals.

Mile 160 with my surgeons

Mile 160 with her surgeons

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What goals do you have for yourself in the future?

I’d like to take more steps forward, of course.  To continue volunteering and give back to the organizations that have given me so much.  To promote bicycle and motorist safety in order to reduce future accidents and injuries like my own.

I’d also like to pursue many of the life goals I had before the accident.  Physical activity, socializing, and travel are still difficult for many reasons.  Ultimately, I’d like to walk into a future that interweaves my old life with my new one.
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rebecca rock climbing

Reaching for new heights!

 

What does a well-lived day look like to you… or in other words, if you knew you were dying tomorrow, what would you do today?

Sometimes I wonder what I would have done differently on November 8, 2010, if I knew what was going to happen the very next morning.  This question reminds me of that.

In my life now, every day is a well-lived day.  I’m not always as comfortable as I like.  I don’t have as much energy as I used to have.  And I’m not happy every minute.  But I’m full of passion and creativity that used to get brushed aside in the daily hustle.  My relationships are genuine and deep.  I prioritize and engage in activities that have meaning.

If you’d asked me 3 years ago where I’d be today, this is certainly not the place.   But taking this journey has taught me to live life fully, in way I never had before.

I wake up each morning knowing ANYTHING CAN HAPPEN. And often, it does!

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Inspiring… right? 

Read more about Rebecca’s 1,000 mile journey—from the day of her first blog post Go
to the day she completed the 1,000th mile, A Beautiful Day.
You can also connect with her at A Thousand Miles on Facebook.

Rebecca, thanks for sharing your story with my readers.
Bike, climb, roll, walk on… because you can!

 

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